Small charity
This organisation is demonstrating their commitment to good fundraising practice. They have committed to follow the Code of Fundraising Practice and the Fundraising Promise.
The organisation can use the following badge on their fundraising materials.
Registration details
Registration expiry:
Current registration starts:
Date of initial registration:
- 2024/2025 23 May 2024 - 31 May 2025
- 2023/2024 5 May 2023 - 31 May 2024
- 2022/2023 13 May 2022 - 31 May 2023
- 2021/2022 10 May 2021 - 31 May 2022
- 2020/2021 1 June 2020 - 31 May 2021
- 2019/2020 9 May 2019 - 31 May 2020
- 2018/2019 9 May 2018 - 8 May 2019
Organisation details
Type: Small charity
Registered charity number: 1157027
For more information visit the Charity Commission website.
Charity website: https://www.ehlers-danlos.org
Get in touch
For issues or complaints about fundraising, please contact:
Name: Susan Booth
Email: info@ehlers-danlos.org